the best is yet to come!

I've been doing better and better at staying positive--it helps that my migraine frequency and severity have both plummeted in the last month and a half, I know.

Goals for 2009:

• Eat well (and according to doctor's instructions) -- this means limiting dairy (wah) and cutting out as much refined & white flour as possible. This means eating more fresh fruit and veggies. No regular intake of sugary sweetness.
  
• Exercise frequently. No need to pressure myself to become a runner or hard-core cardioaddict. Just regular, gentle exercise. Slow laps in the pool, long walks around the neighborhood, yoga class. Take it easy while staying in shape and keeping those delicious endorphins and serotonin levels coursing through my body.
• Accept my life as it is and figure out which goals of mine are realistic. Don't take on too much. Meditate. Learn to calm myself down and lower stress. Don't overcommit. Do make time for friends and family when possible and healthy. Don't give myself guilt trips for not accomplishing every single thing I have ever considered.
  
• Sleep as regularly as possible. Try to cut out naps (wah). Wake up around the same time each day.
• Don't get intimidated by the above goals! Any little bit I can do will help; the more I do, the better off I am.
  

I wish you all good health and happiness in 2009. I haven't been blogging as much because I haven't wanted to think too much about migraine while feeling well. No, I don't think I'll jinx myself or anything; it's just that, for the moment, I don't need this outlet as much. Oh, okay--and I think I'll jinx my current good fortune just a bit.

That being said, goodbye for now! Talk to you next year.

9 days and counting

Excuse me if I sicken you with my sickly sweet view of the world again, but I'm feeling great! The past few days I have been staying at my friends' new house in Atlanta, and I've been overexposed to triggers that usually work on me like clockwork, causing me to pop a few triptans in order to function.

Here are the things that usually tip me over the edge, especially over Christmas:

drinking a fair bit of alcohol (two nights in a row, at that!)
sleeping in a place where cats might jump on you and meow in the middle of the night
slight cat allergies (sad.)
changing weather patterns (sunny to cloudy, cloudy to rainy, rainy to soaked, creepily warm to freezing)
interrupted/disrupted sleep (2:30 AM bedtime one night, 4:45 AM the next, 11:45 PM the next)
driving in the car in unfamiliar, trafficky areas
having my period
exposure to fluorescent lights
exposure to cigarette smoke
loud music

In the last four days, I have experienced inordinate amounts of the above-listed triggers and am still alive to tell the tale. Nine days without the need to take a Relpax or Maxalt--and on those days I've felt really good, not half-blah as I often do on my non-migraine days.

Of course I'm hesitant to chalk it all up to the 4-6 weeks of regular exercise, but I do think that's the key player in this equation. Add that to the fact that I am hopeful--truly hopeful!--about my chances of operating like a normal human being again and you get one optimistic, good-feelin' girl.

Merry Christmas. I hope my next post is just as pain-free, and I wish you all happy, HEALTHY holidays!

hope!

I had my much-anticipated appointment at one of our city's hospital's Mind-Body Institute today. The doctor met with me from 10:10 AM - 12 noon, uninterrupted, in a room lit with two small lamps. We talked the entire time about my health and my life (which he'd taken the time to read about already in the extensive intake forms they send to you before your appointment). I have a long list of things to do to help myself, all focused on regulating my serotonin levels and keeping them up. As I've seen a huge change in my pain and fatigue levels since beginning more frequent exercise nearly a month ago, I have the highest hopes that continuing to keep myself active, fit, and well-nourished will lead to less pain.

I'll write more about it later--I must go get new tires put on my car. But for now I just wanted to drop by and say that, for the first time, I have hopes of really improving my health and cutting migraines out of the picture most days of the month!

Love,
me

I wash my hands of this!

After nearly four years of being on my condo association's board of directors (first as secretary, then as secretary/treasurer, and now as treasurer), I have felt some relief: due to my urging, we are going to hire an association management company to take over! I'll still retain my fancy title but with 99% of the work going to the management company and not to me. No more putting notices in people's boxes, asking them to clean up their yards! No more invoicing neighbors for their late, monthly condo dues! No more meeting with accountants multiple times a year to work out the books and file the taxes! No more emailing homeowners asking them to get their tenants to clean up the remnant's from Friday night's party! No more emailing association members repeatedly with getting very little in return! No more feeling guilty because I didn't do as much as I felt I should have (despite no one else doing much at all)! No more reminding people once a month that they cannot leave garbage in piles OUTSIDE of the cans! No more calling the garbage service to ask them to clean up extra mess! (See photo.)

Yay! Joy! Heaven!

There's still more work to go, but that works is OURS (and not mine), as it should have been all along. I can't say how many neighborhood-related woes have contributed to migraine attacks.

Whew.

Dinah won't you blow, Dinah won't you blow...

WARNING: THIS POST MIGHT HAVE TOO MUCH INFORMATION FOR THE NON-MUCUS-FRIENDLY OR FEINT OF HEART.

I have had this bout of sinusitis for at least (at least!) a week now. Despite a Z-pack, lots of rest, and some doctor-recommended over-the-counter meds, the cough and mucus are not going away as quickly as I'd expect. Ugh.

On Tuesday night, the night before my doctor's appointment, I was doing the routine nose-blow-before-bed move when, all of a sudden, liquid started coming out of my right nostril. A lot of it. For a few minutes, I continuously blew my nose and clear, very warm water (water?) came out of my right nostril. At first I couldn't help but be relieved: it seemed that as soon as this strange liquid was brought forth, the pain in my cheek and ear immediately became MUCH better. So much better. But then I got a little nervous. I've never seen anything like that happen before and even thought about calling J. to see if it'd ever happened to him. "Oh, you're worrying for nothing," thought I. After the few minutes of the clear stuff (which was nothing like mucus, mind you) coming out, it seemed the coast was clear. I sat on my bed cross-legged and--suddenly--plop! It was dripping from my nose and onto my pant leg. GROSS. A couple more tissues and everything was fine. As if it'd never happened.

I told the doctor about this episode because it seemed so strange to me. Okay, my cyberchondriac self knew the chances were slim, but couldn't there be a chance I was leaking cerebrospinal fluid? (I didn't voice this concern to the doctor, but I had voiced it to myself the night of the weirdness after a twenty minute internet search.) As I told her about the episode, she frowned and looked at me: "Well, since you edit medical documents, I'm guessing you might be a bit concerned about a cerebrospinal fluid leak?" "Yes!" (I didn't mention that I don't edit anything dealing with CSF leak ever and that it was a late-night Googling session that made me aware of the problem in the first place. Let her think I have professional interest.) She told me that she really doubted there was a CSF leak, but that if it happened again like that I should call her and make a trip to the ER. She said it was quite possible that the severity of my sinus problem could have meant that for days my mucus has been building up in my sinuses. I was staying well hydrated, and the water I was drinking wasn't able to mix well with the older, thicker, nastier mucus so the watery stuff was sort of building up behind the old, gross mucus. Once I cleared that old, super-green mucus out for the moment, the watery stuff was released in a gush. Maybe. (Yuck, right?) She then said, "And it's not as if you've had any head injury lately, right?" "Actually, I was in a car wreck in mid-November and had a minor head injury." Oh. Then let's keep an eye out just in case something else is up, kids!

The waterfall phenomenon has not happened again, but that doesn't mean I'm not keeping an eye (a nose?) out just in case.

And then tonight something strange happened. I have been feeling a bit better today--just a few coughs and much less need to blow my nose (though I certainly am obviously sick, both audibly and visibly). Had a migraine this morning (period-related) but Imitrex wiped it out immediately. I blew my nose before settling into bed when suddenly I realized I couldn't stop. Couldn't stop blowing my nose, that is. I spent five minutes blowing my nose, people--and everything was coming from the right nostril. It seemed each tissue must be my last, but within 2-3 seconds I could feel more coming immediately. Then the clear feeling for a second, then the need to blow my nose. (Here's when I go into even more detail, for those of you who are as gross as I and have continued reading this far!) The mucus was green but not as thick as it's been for the last few days. It was green and really thin and liquidy. And it kept coming. For 5-7 minutes. TWELVE tissues' worth.

Does anyone have any insight? I'm hoping this all can be easily explained. I have never had such a sinus problem last so long, so perhaps this is just par for the course when sinusitis has progressed as far as mine has.

Still--let me know your thoughts, even if you are as gross and crazy as I have sounded in this post!

Goodnight!

doctor's diagnosis: sinusitis

I was nervous to go to the doctor today. I called around to a few clinics and urgent care centers yesterday afternoon to see what places could take me soonest and at what price. Despite reading a couple lackluster reviews for the health center closest to me, I booked an appointment anyway. Were I needing to see someone about Migraine, perhaps I would have been a bit more cautious. But since I was going in to get some antibiotics for a seemingly routine sinus infection, I figured it wouldn't hurt to see a family doctor and hope for the best. The initial appointment is only $50 (over $110 cheaper than my second option, and 4 miles closer to my house!); after that, you pay on a sliding scale based on income information you provide to the clerk. The maximum payment for a doctor's visit is $50, however. Awesome.

It's been over two years since I had a good, old-fashioned, regular (read: non-neurologist, non-ER) doctor's appointment and I was pretty nervous. I prepare myself for a meeting with someone who might not be a good listener, who might not be warm and caring. Despite his being warm and kind, my former neurologist was not the best listener--his NPs were atrocious, but that's a whole other story.

This feels silly, to be basking in the glow of a great doctor's appointment. Who does this? Someone who has been treated as if she were just another routine appointment to check off the list during a very long, very typical day? I'm not sure. Someone who's used to people trying to play her (contractors for home improvements, car repair folks, insurance companies)? Maybe. In any case, I was really happy with almost every aspect of my time spent at the place.

First off, I must give props (ew--I've never said that before and hope never to again; I'll keep it in to remind myself of that solemn oath) to the receptionist I spoke with yesterday afternoon when making the appointment. She heard how stuffed up I was and was really warm and very helpful: "Oh, honey, you don't sound good! Let me see if I can squeeze you in tomorrow morning. And I'll call you if something opens up this afternoon!"

Despite my better intentions, I drove to the center instead of walking. Hey, it was raining and I felt sick and the .9 mile drive probably didn't kill the environment all that much. By the time I left, the rain was POURING down and I was grateful to have a car. I walked in to a room half-full of families of various races. Seemed most people had colds or the flu--it is a rainy December, after all. The guy at the desk was really friendly, even when I walked up to the window after an hour to ask when I would be seen. Yeah, that was the frustrating part--my ten o'clock appointment ended up being at 11:05. Alas. Luckily I didn't have anything better to do than sit and read.

Oh, oh! The WAITING ROOM! I'd brought my red-tinted shady glasses to protect my little eyeballs and brain from the inevitable fluorescent lights, and guess what? The waiting room was softly lit with low-wattage incandescent bulbs. Oh, what a relief, especially when the wait was a bit long! Even my highly revered neurologist, a headache specialist, has glaring fluorescents in the waiting room. (I really don't mean to rag on him and his staff so much--apparently I have some pent-up bitterness!)

I got weighed and was a bit disappointed--turns out the post-Zonegran weight I successfully gained has, for the most part, dropped off again. Still technically underweight by a couple pounds, but I don't look creepy-skinny or anything. Not at all. I waited in the exam room for a while between nurse and doctor visits, but I passed the time by reading an outdated People--I hadn't realized just how bad the writing and stories and fluff had gotten! Not my style. The doctor walked in and I immediately felt a sense of relief--she was young, smiling, and genuinely apologetic about the supposedly atypical wait. She seemed knowledgeable about Migraine disease, patiently listened to my whole story of the cold-turned-sinus-trouble, and made some OTC drug recommendations as she prescribed an antibiotic. I mentioned something else troublesome to her and she was really comforting and helpful on that front, too--more on that later. For now I'm freaking myself out a bit over a symptom that could very well be nothing, so I'll just wait it out 'til I forget about it again.

All in all, I was really pleased--can you tell? What a sense of relief! How great to have a ten- or fifteen-minute appointment with a doctor who listens, who's friendly, and who didn't act like I was crazy when I mentioned weird symptoms I was concerned about. Three cheers for new doctor! I have a checkup next week. If I'm still this infatuated, maybe she will become my regular family doctor! Yippee.

Very sleepy and very sinusy and very drugged up.

No significant migraine pain for eight days, kids. EIGHT DAYS! True I have this sinusitis frustration, but it sure does beat a migraine episode!

blog theft!

Dude, what the hell? (Sorry if I revert to Bill & Ted talk, but I'm quite miffed!)

I got a Google blogs alert for a blog entry called "the migraine girl: what's so pernicious about feeling good?" The document is mine, but has been rewritten to include random spaces, deliberate misspellings, and the like. I of course posted an entry called "what's so bad about feeling good" on November 30. I did NOT post it on some b.s. site called "Best Farma Online." I've been stolen from! Right?

I recall talk from other migraine bloggers awhile back about a guy stealing their content and posting it on his supposedly authorless site. (No author listed, harder to know who's behind it.) I can't remember what action they took or how they got him to remove the plagiarized material.

Help, bloggers!

For the moment, I'll be posting a comment on this person's web page immediately. I'm so annoyed and angry!

healthy boundaries for "chronic babes"

Jenni Prokopy has this wonderful article on ChronicBabe.com this week about setting healthy boundaries in order to keep yourself and your relationships going strong.

I love it! Check it out here.

December headache blog carnival posted!

And no, I didn't get around to posting this month. Yet again I forgot! :(

Happier Holidays: December 2008 Headache Blog Carnival

green snot alert

Gross title, I know. But apt if you were to step into my life this very day.

I've had a cough/cold/stuffy head for over two weeks now. We all know I get angry about my own (and others'!) lack of health insurance, but at times like this that anger really flares up. I am confident that this is a cold. I am not being helped much by over-the-counter medicines and, now that the cold seems to be morphing into a sinus infection, I feel that I may soon want a doctor's help/antibiotic prescription. But I won't go to the doctor for this. First off, I don't have a general practitioner anymore. Used to have one but, as per UGA policy, I can't go see her now that I'm not affiliated with the university. Alumni not welcome. Wah. Never bothered getting another GP because, well--I had no insurance and no inclination to drop a few hundred bucks to see a doctor just so I could establish a relationship with him/her.

So now I'm green-snotted and stuffy-headed. Sinus infections can be extra obnoxious for us migraineurs, as we're oft used to having stuffy heads related to migraine attacks. Stuffy heads can lead to migraines or be a side effect of certain stages of migraine. I don't want my stuffed self to turn into stuffed-and-migrainey self. So far so good, but still.

I'm so mad that I can't call up a friendly doctor and say, "Hey there, this is your patient, Janet! What's going on? Listen, I'm feeling icky and think I might have a sinus infection. Could you be old-fashioned-doc for a sec and call in a prescription for me? Oh, you can't? That's okay--how about I make a drop-in visit to your office this afternoon. Cool? Cool."

Last time I made a doctor's appointment I was told it'd be over TWO MONTHS 'til I could get in to see the doctor. That two months is almost up--I have my appointment with this guy in mid-December. Many an Athenian has told me he can work wonders with migraineurs, focusing on lifestyle changes. I love a good holistic doctor who's not a quack--this guy is supposedly the real deal. I'll drop a couple hundred with fingers crossed and get back to you. It's gotta beat the rude service and hyper-prescribing tactics I ended up encountering at my neurologist's office.

Scratch that: EX-neurologist. I think I may have forgotten to mention that I dumped him a month or two ago. Yay, me! I gave him and his office a chance to keep me, but they didn't seem to give a crap. Alas.

Anywho. The 15+ day cold isn't much aggravating my head, though a big cough can certainly give me a burst of mild head pain. Ick.

I'm off to blow my nose. Jealous?

attempt at ponytail: fail

I put in a tiny little ponytail this afternoon--it's the first time I could put most of my short hair up and have it stay. I figured I could wear it for a couple hours before it started hurting my scalp.

Scratch that plan: it's been twenty minutes and I'm taking the thing down. Boo!

Little annoyances like this of course don't matter in the grand (or not-so-grand) scheme of life, but they really bug me. I can't even wear a ponytail if I want to! I can't sit in a friend's house if a scented candle is lit! I can't wander into a bar where smoking is allowed even if I love the band that's playing! Wah, wah, wah.

how wonderful is THIS?!

Came across this in my daily news search online. Smile!