tag:blogger.com,1999:blog-22120165.post5075522519579973272..comments2023-03-29T12:08:08.119-04:00Comments on the migraine girl: a note to those who are considering Zonegranthemigrainegirlhttp://www.blogger.com/profile/08727504452739993888noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-22120165.post-25595691957488295992010-12-04T13:32:24.316-05:002010-12-04T13:32:24.316-05:00Hey there, most recent anonymous blog commenter! T...Hey there, most recent anonymous blog commenter! Thanks for sending some feedback. If you poke around the web a bit, you'll find a handful of regular "migraine bloggers" out there. One site that has particularly helped me feel less alone is chronicbabe.com--check it out. I hope you get to feeling better soon.themigrainegirlhttps://www.blogger.com/profile/08727504452739993888noreply@blogger.comtag:blogger.com,1999:blog-22120165.post-83409163722594843792010-12-01T16:40:05.871-05:002010-12-01T16:40:05.871-05:00Amazing, there can't be two us in the world! T...Amazing, there can't be two us in the world! The headache girl is what represents me to most people that know me. It's been 22 years of a mystery and each day is a stuggle as you know. Mine are simply always there except when I sleep. I was researching zonegran and found you. How are you today? I would of never imagined someone to blog about a headache but for those of us who have this illness it is interesting.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22120165.post-37534336666267862452010-10-17T21:07:50.711-04:002010-10-17T21:07:50.711-04:00Karen, I don't remember any particular problem...Karen, I don't remember any particular problems I had while weaning myself off Zonegran, but I do trust that you know your husband well and know when he's acting irritable and/or out of character. I'm frustrated alongside you when I hear that the neurologist was dismissive of your comments and concerns. "I've never heard of that happening" is but one of a handful of things my doctor said to me that led me to finding a replacement doctor who actually LISTENS and trusts what I'm saying.<br /><br />Anonymous, I have never tried Topamax but have some blogger friends (& regular life friends) who have had some unpleasant side effects that were quite reminiscent of what I went through with Zonegran. If you do decide to go with Zonegran, I hope it works for you. Keep us posted!themigrainegirlhttps://www.blogger.com/profile/08727504452739993888noreply@blogger.comtag:blogger.com,1999:blog-22120165.post-77512480599527205682010-10-13T18:41:34.615-04:002010-10-13T18:41:34.615-04:00about to start zonegran from topamax. all your sid...about to start zonegran from topamax. all your side effects you described are the same as the side effects i complained about on topamax, thats why they wanted to change my medicine. so i began googling zonegran to find more info. appears to be same side effects. have you ever been on topamax and if so could you compare side effects?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22120165.post-23718820463325306202010-10-01T16:05:06.666-04:002010-10-01T16:05:06.666-04:00My husband recently stated taking Zoloft (50mg) fo...My husband recently stated taking Zoloft (50mg) for a major depression bout. He also was prescribed Zonegran (25 mg to start - work up to 100mg) for daily headaches. I knew within a couple days that Zonegran was going to be a problem - he is so sensitive to so many meds, he's hard to treat. He started feeing very hot to the touch within a couple days - and it only got worse. After a couple weeks (still at only one dose a day) his hand devloped a tremor and then visible muscle twitches - legs and arms and even his side. While Zonegran took away his headaches - the side effects were increasing. I called the Neurologist PA he saw and he SO did not believe a word I said about the side effects - he said that he has never heard of anything I was telling him. I told him that I could hardly get next to my husband because it was like a wall of heat just coming off of him - his hands were uncomfortable to even touch and of course the other problems. He told me to just have him quit - no taper down or anything - he's only been on it for three weeks. He has now been off Zonegran a couple days and wants to sleep all the time and he is irritiable and edgy.<br /><br />The side effects are slowly fading, so I'm assuming that the Zonegran, not the Zoloft was the problem. I wonder if anybody else experienced irritability, sleepiness and edginess as a withdrawal symptom.Karennoreply@blogger.comtag:blogger.com,1999:blog-22120165.post-66351447368277169852010-09-10T10:46:22.854-04:002010-09-10T10:46:22.854-04:00Anonymous 1, Thank you for your post. I appreciate...Anonymous 1, Thank you for your post. I appreciate knowing more as to how and why that drug affected me as it did. <br /><br />Anonymous 2, I've never used Botox for migraines, as it's cost prohibitive for me. I don't have insurance, but if I did I might explore that option. I'm so happy it's working for you. I hope that continues--I know lots of migraineurs have found relief with botox.themigrainegirlhttps://www.blogger.com/profile/08727504452739993888noreply@blogger.comtag:blogger.com,1999:blog-22120165.post-29324949561857809822010-09-05T14:27:34.744-04:002010-09-05T14:27:34.744-04:00Have you tried botox for your migrains? I have su...Have you tried botox for your migrains? I have sufferend from migrains for over 15 years and the only thing that is helping now is botox.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22120165.post-39762174896725089672009-04-25T16:41:00.000-04:002009-04-25T16:41:00.000-04:00Zonegran has a long half-life. That means it can t...Zonegran has a long half-life. That means it can take several weeks for a change in dosage to change the levels in your body significantly. This may be why you didn't feel depressed right away when you decreased your dosage.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22120165.post-77578837576947462012008-04-09T07:40:00.000-04:002008-04-09T07:40:00.000-04:00great blog! i'm 19 and i've had migraines since i ...great blog! i'm 19 and i've had migraines since i was 10. i was put on 400 mg of zonegran a year ago. i just recently started weaning off of it and i can already see an improvement in my energy level. however, i have been feeling more depressed than ever. i found this website interesting: www.rsdalert.co.uk/drugs/Zonegran.htmEmilyhttps://www.blogger.com/profile/06179341080343261336noreply@blogger.com